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year ago today, my second daughter Matilyn was born at 2:57
p.m. Every child is a blessing, but this girl is a miracle sent
straight from Our Father's hands. One year ago this past weekend,
I stood on the other side of the unknown. For twenty weeks,
I had carried my child with the knowledge that she might not
live. At 17 weeks gestation, we learned our baby was a girl
for the first time at Vanderbilt University Medical Center.
We had been told to expect a neural tube defect, which made
me think brain defect or spina bifida. Then my sweet doctor
said it was likely an abdominal wall defect as there had been
a question about our baby's abdomen in her first ultrasound
at 12 weeks. I'd never given a thought to my baby's abdominal
wall before!
On that fateful day in October, 2005, I stared at the ultrasound
screen and gazed into the eyes of my very heart. Matilyn Faith
was dancing around within me. And her bowel was floating beside
her beautiful face. As only a mother can do, I immediately looked
to all the beauty that was my child. Her face was perfect and
her heart had four chambers and her brain looked healthy. Her
spinal cord even looked perfect. So what if she had an opening
in her belly that let her insides float out in the amniotic
fluid with her? She was mine and she was beautiful and I knew
she was fearfully and wonderfully made and I praised my God
for her. Doctors continually reminded me that Matilyn's gastroschisis
was "potentially fatal" and that all we could do was
monitor her progress and proceed accordingly. That was merely
the background music to the miracle God was telling me all about.
My mother just knew I was worried and wouldn't admit it. I couldn't
believe I was not worried. I was filled with the peace that
only comes from God. And it was so much more than enough.
When my husband and I arrived in that delivery room to induce
labor on that sweet Monday morning, I was filled with every
emotion known to man. Matilyn taught me more about praying than
I could have learned from any one else. I asked Matt to pray
with me before "the show began" and we stood with
our foreheads together and our hands on my belly as we prayed
to God to give us the strength to face the day, to give our
child the strength to face the greatest battle of her tiny life,
to give the medical staff the knowledge they needed to care
for our miracle girl, and for, above and beyond all else, the
Lord's will to be done. I viewed my position that day not as
an expectant mother in a delivery room, but instead as that
of a missionary. I could show these people, all these overly
educated people who though they had seen it all, the peace of
God. I could really rest in the palm of God's mighty hand and
let them see what that looked like. I could keep my eyes on
Him and know this all would be over very soon.
Labor with my first child went fast, so we anticipated this
one to be no different. To our surprise, labor was not progressing
as quickly as it had with my first daughter, Hope. I remember
looking at my sweet husband at 2pm and saying "Matt, if
I don't start dilating soon, I may have to have this baby by
c-section. And they say that would increase her chances of having
fluid on her lungs. We don't want that. You say a little prayer
and I'll say a little prayer. Then let's try to take a nap."
I was almost asleep when my dear nurse came in to say they'd
lost track of the baby's heartbeat and she needed to adjust
that annoying strap on my belly. She thought perhaps the baby
had dropped. I told her I did feel like the baby was resting
lower than before. She checked me and I was a 4. Okay! She walked
out the door to get me some ice chips and when she came back,
I told her I felt pressure. She checked me again and I was a
6. Literally five minutes had passed! She looked at my contractions
on the monitor and got nervous. She started alerting everyone.
Let me just say that this nurse was sent to me straight from
God. She made sure my epidural was started when I wanted, and
after waiting until 7cm to ask for one with my first child,
I decided we'd should waste no time and start the epidural less
than an hour after the Pitocin. I even had a button to push
when I felt any pressure at all. Now that is how God surely
meant for labor to be!
By 2:30pm, just a half hour after Matt and I had decided to
pray and nap, I was told not to move, laugh or even sneeze!
This baby was ready to be born, but my doctor was still on his
way from a nearby hospital. I'll never forget lying on my side
with a room full of doctors, residents, nurses, interns, and
every other person in blue scrubs within a five mile radius.
One resident said "Wow, you're calm. I want you to have
my babies for me!" I just smiled at her and told her I
was praying. A silence fell over the room. It was amazing. My
doctor arrived, I was positioned for delivery, and God started
showing off. I can't tell you how close God stayed to me that
day. When I couldn't be still for my epidural, I saw Jesus's
back, striped and bruised and bleeding for me in my mind and
knew I could surely endure this for Him. When I was scared throughout
my pregnancy and while I labored, I always felt as if God was
putting his finger to my mouth to hush me and remind me that
I just had to do this for Him. Birthing my girl was the most
amazing experience of my life. I laughed, I smiled, I cried
as I felt her head come into this world with my right hand and
her tiny feet sliding down underneath the skin on my stomach
with my left hand.
I am covered in chills as I tell you as that the baby whose
voice I only dreamed of came into this world screaming. By the
grace of God, I looked right past all the intestines and organs
that were outside of her body and into her face. I wondered
whose nose she had and gazed at her beautiful toes. She was
taken to the side by the Neonatal Intensive Care Unit team,
wrapped in a sterile covering, swaddled in a blanket, a tube
was placed down her throat, and her head was covered with a
tiny hat. And they gave her to ME. There are no words to describe
how I felt in that moment. There just aren't. For months, I
just dreamed of seeing her little face one time. I just begged
God to let her develop enough to breathe for a little while.
Then, I rejoiced when I thought she'd developed enough to maybe
live long enough to be a donor so that other parents might not
lose their little ones as soon as I would. I knew the odds were
against us. I was not bitter. I was not pessimistic. I was thankful.
I was thankful for every moment. I knew God was God and I was
not. And I praised Him for every moment, every kick, every hiccup
I shared with my girl.
What I never expected was a miracle. But that's what my sweet
Father gave to me in Matilyn Faith. (I named her after the two
strongest, faithful men in my life and both of her fathers,
Matt and God. Faith alone carried her here.) Her apgar scores,
even with all of her small intestine, part of her large intestine,
part of her stomach, and her fallopian tubes outside of her
body, were 9 and 9! She wasn't blue. She was pink and she was
yelling! I held her close to me for a brief moment in time and
the whole world stopped. She stopped screaming when I spoke
to her and she looked at me with one tiny eye opened. Through
my tears, I told her I loved her and to be strong. That child
took me at my word.
God assured me time and again that He would heal my lamb. He
reminded me so many times that this would be for His glory.
It would not be fun and it would not be easy, but He would not
leave me and He would not let go of His little Matilyn Faith.
I did not know if my lamb would be healed on this side or at
home with Him, but I was peaceful and confident that He would
heal my lamb. I read, over and over, Psalm 139 and I read the
story of Abraham and Isaac. I rested in knowing that Matilyn's
form was not hidden from God and that it was He who was knitting
her together in my womb. I reminded God that He had spared Isaac
and I told Him how I longed for Him to spare my Matilyn, but
I would give her to Him and allow Him to have His way with her.
After all, He knows best, all the time.
It is the greatest honor of my life to be the only one who
can tell you this story from this perspective. For twenty six
days, I stayed by my child's side in the NICU. Two hours after
she was born, she went to the operating room for the first time.
The man's hands God used to heal our girl were the same hands
God had used to heal our fourteen month old daughter Hope only
three months prior to this day. When my husband and I married
less than four years ago, we gave God the reigns. Six months
later, we discovered our first child was on her way! She was
born beautiful and healthy, then we found a mass on her neck
at seven months old. For months, we were caught in limbo without
answers as we waited for tests, etc. This was when God first
started teaching me about patience and being still and knowing
that my children really were not mine, but His. Hope had a cystic
hygroma, which was a benign mass that was filled with fluid
that did not drain from her lymph nodes. Dr. Edmund Yang removed
that golf ball sized mass from Hope's sweet neck on her fourteen
month birthday. She has not looked back since. So, we were confident
and peaceful about sending Matilyn with Dr. Yang. We don't understand
why God's trusted us with such miracle girls, but we have learned
to never take them for granted. We are better for having walked
this road, though we would have never chosen it. Everything
happens for a reason and the way Hope's journey prepared us
for Matilyn's is perfect proof of that. Imagine that! God was
telling the truth in Jeremiah 29!
Back to Matilyn though! Just hours after she was born with
what my husband described as more intestines and organs than
both of his big hands cupped together could have held outside
of her body, we saw her and she was beautiful. A tiny bandage
covered what was now her bellybutton. (Ah, let me just show
you. Send me an email and I'll be happy to supply a few pictures
from then and now!)
On day 2, nurses who cared for her the day she was born came
into her room, only to walk right back out, thinking they were
in the wrong room. No one believed that everything was able
to placed back inside her five pound, thirteen ounce body. Four
days after she was born, Matilyn came off the ventilator and
breathed on her own. Fifteen days after she was born, she was
given her first 5cc of Pedialite. I sent out an email begging
everyone I knew to pray for poop! If Matilyn could just have
a dirty diaper, we'd know there were no blockages in the intestine
that had potential to be so damaged from floating outside of
my body for so long. Just hours after Matilyn's first feeding,
her belly became distended and the feedings were stopped. My
heart sank. Then I looked up and God lifted it again. On the
morning of Matilyn's 18th day, I entered her room to see her
swinging in her baby swing. When the nurse helped me get her
out so I could hold her, we both smelled an answered prayer!
Our prayers had been heard and Our Lord proved Himself faithful
once again. Matilyn had no blockages, and we had proof!
On day 23, I was able to nurse my second child for the first
time. She was a champ. Praise God! For two days, she was monitored
and she was tolerating feeds well. Now there was no reason for
all these wires. She could breathe, she could eat, she was healed.
I begged Dr. Yang to let us go home for Easter. We're not sure
if Dr. Yang's a believer, but we had reason to suspect he's
not when he asked when Easter was. We told him Sunday, just
two days away. He said he'd try to let us out in time, but no
promises. On March 26, 2005, Matilyn's twenty sixth day in this
world and the day before Easter, we took our girl home. Can
I just tell you what she wore? She wore a tiny purple Easter
dress with bunnies in the smocking. It's precious, but not only
because it's cute. I first saw that dress on the morning of
my last doctor's appointment in my hometown, just three days
before I gave birth to my miracle. I did not buy it because
I did not know if the Lord would let us keep her in this world
until Easter. When she started making such amazing progress,
as if she were listening only to God's voice in her ear and
hearing nothing the medical staff had to say, I came home and
bought that dress. I brought it to the hospital and told her
she was going to wear it on Easter, even if she had to do it
in her hospital bassinet. My husband and I were floating on
clouds when we carried our tiny daughter out of that hospital
in her beautiful Easter dress. We brought her home to meet her
eighteen month old sister for the first time and we were overwhelmed
with the grace God had showed to us as we celebrated Easter
at home as a family and realized that God still moves stones.
Now, Miss Matilyn's been home with us for almost a year. I
watched the clock all day and relived the day of her birth in
my mind and in my heart. That was such a pivotal point in my
life. I will never be the same. And I need you, my dear friends
to know that each of you played a very important role in seeing
me through that time of my life. God is faithful. He is so faithful.
Matilyn ate birthday cake tonight and didn't have a care in
the world. Sunday, she will have a party with close friends
and family and we will celebrate her life, as I do every moment.
God is good. If you need to see pictures as proof, I promise
I have them. :)
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